Providing help and support for children and young people with disabilities and life-limiting conditions and their families.

 

All Ireland Institute of Hospice and Palliative Care (AIIHPC)

is an all island organisation, comprised of a consortium of eight health agencies and four universities, all working to improve the experience of supportive, palliative and end-of-life care on the island of Ireland, by enhancing the capacity to develop knowledge, promote learning, influence policy and shape practice. The aim is to secure best care for those approaching end-of-life. Their work is focused on the following three areas: Education, Research, Policy and Practice.  aiihpc.org

 

Anam Cara

is an organisation who help bereaved parents in Ireland to cope and journey on after they have lost of a child. It is open to all parents regardless of the age of the child, how they died or if it a recent bereavement or not.  Anam Cara - T. 01 4045378

 

AMNCH, Tallaght

The Adelaide and Meath Hospital Dublin, Incorporating the National Children’s Hospital and St. Loman’s, is Ireland’s acute hospital service located in southwest Dublin.  The Hospital provides child-health, adult, psychiatric and age-related healthcare on one site. There are 625 beds in the Hospital and almost 3,000 people are employed here. www.amnch.ie Tel. 01 4142896

 

BUMBLEance

Is a modern children’s ambulance service and it is the world’s first interactive ambulance specifically designed for children with the capacity to operate the latest medical equipment and inter hospital communication systems.  It provides improved and professional medical transportation services for long-term sick and seriously disabled children who require professional ambulance transportation. They will transport children in a fun environment from the far reaches of Ireland, both urban and rural, to their treatment centres.  This service is free.  www.bumbleance.com  Tel. 083 0044 444

 

Central Remedial Clinic (CRC)

provides a range of specialised services for children and adults with physical disabilities. Its facilities and services are available to people from all over Ireland. They provide services such as: physiotherapy, occupational therapy, seating and mobility, gait analysis, speech and language therapy, nutrition and dietetics, nursing, educational technology, client technical services, social work, psychology and medical services. www.crc.ie T. 01 8452200

 

Enable Ireland

provides free services to children and adults with disabilities and their families from 40 locations in 14 counties. Covering childhood to adulthood their expert teams work with the individual and their family on a plan for each life stage. Their services for children and their families cover all aspects of a child’s physical, educational, and social development from early infancy through adolescence.  www.enableireland.ie  T: 01 2615900

 

Child Vision

is the National Education centre for blind children located in Drumcondra, Dublin.  They provide educational opportunities for Ireland’s blind and partially sighted children and young adults in a safe and nurturing environment. They provide varied education programmes and ensure that all students are treated as individuals and brought on their own specific journey of learning so that they may become independent, happy and resourceful members of their communities.  www.childvision.ie  T.  01 8373635

 

Dept. of Social Protection

Information on all carers supports and how to access grants and allowances which you are entitled too as a carer.  www.welfare.ie   T. 1890 500 0000

 

EPIC National Independent Advocacy Service for Children

(formerly IAYPIC) is an independent association that works throughout the Republic of Ireland, with and for children and young people who are currently living in care or who have had an experience of living in care. This includes those in residential care, foster care, hostel, high support & special care.   www.epiconline.ie  T. 01 8727661

 

Financial Wellbeing

are an organisaiton that specialise in setting up Special Needs Trust and guides parents on funding their child’s trust from entitlements, for the security of their future. Most parents are unaware of their full range of entitlements and the probability that their children’s quality of life can significantly reduce after their death. It can be prevented through Financial Well being Special Needs Trust Planning.  www.financialwellbeing.ie  T. 021 4823635

 

HIQA

are an independent authority responsible for driving quality, safety and accountability in residential services for children, older people and people with disabilities in Ireland.  They are responsible for driving improvements in the quality and safety of healthcare on behalf of patients. We develop standards, monitor compliance with standards and carry out investigations where there are reasonable grounds to do so. One of their functions is to carry out national Health Technology Assessments (HTA) across our health system. HTAs evaluate objectively new technologies from a clinical point of view.  They also advise on the collection and sharing of information across the healthcare services in addition to evaluating and publishing information about the delivery and performance of Ireland’s health and social care services.  www.hiqua.ie  T. 021 2409300

 

Inclusion Ireland 

Inclusion Ireland provides a central forum for its members to identify priorities and formulate nationally agreed policies to present to government, statutory bodies, other relevant groups as well as the general public. Inclusion Ireland campaigns for changes in services and legislation that will improve the quality of life and participation of people with an intellectual disability in Irish Society.  www.inclusionireland.ie  Tel. 01 8559891

 

International Children’s Palliative Care Network (ICPCN)

is a worldwide network of individuals and agencies working with children and young people with life-limiting and life-threatening condition. The ICPCN shares a vision that the total needs of life-limited children and their families should be met, to encompass physical, emotional, social, spiritual and developmental aspects of care.  www.icpcn.org.uk

 

Irish Association for Palliative Care (IAPC)

is a multi-disciplinary membership organisation established in 1993 as an all island body with the purpose of promoting palliative care nationally and internationally. The children’s specialist interest group (SIG) was established as a working multidisciplinary group of the IAPC in November 2009 to be a learning network, a source of information and data and an expert advisory group to the IAPC Board. www.iapc.ie, T 8734735

 

The Jack and Jill Children’s Foundation

provides direct funding to families of children with brain damage, who suffer severe intellectual and physical developmental delay, enabling them to purchase home respite care.  Additionally, they also provide palliative home nursing care for children age 0–4 years with neurological and non-oncology conditions.  www.jackandjill.ie, T 045 894538

 

Ombudsman for Children

The Ombudsman for Children’s Office (OCO) is there to make sure that the government and other people who make decisions about young people really think about what is best for young people.  The things that the OCO can do are set out in a law called the Ombudsman for Children Act 2002. The main areas of work of the OCO include, Independent complaints handling, Communication & Participation, Research & Policy   www.oco.ie T.  1800 202040

 

Our Lady’s Children’s Hospital, Crumlin

is Ireland’s largest paediatric hospital. It provides evidence based quaternary, tertiary and secondary quality care to children and adolescents in a safe environment driven by knowledge through education & research.  www.olchc.ie, T 01 4096100

 

Suzanne House, St John of God Services 

Suzanne House is a community children’s respite service. We support children with terminal illness and / or complex nursing needs in a small, homelike environment. Children who need specialist nursing intervention can also be supported.  www.sjog.ie  T: 01 452 1966

 

Temple Street Children’s University Hospital

Is an acute paediatric hospital providing a referral and care service on both a regional and national basis.  Seven major specialities at Temple Street today include neonatal and paediatric surgery, neurology, neurosurgery, nephrology, orthopaedics, ENT and plastic surgery.  The Hospital is also the national centre for paediatric ophthalmology, the national craniofacial centre, the national airway management centre, the national meninogococal laboratory, the national centre for inherited metabolic disorders and the national screening centre.   www.CUH.ie  Tel. 01 8784200

 

The Irish Hospice Foundation

was set up in 1986 to fund and help develop specific hospice services. The Irish Hospice Foundation shares an international vision that the needs of children with life limiting illnesses and their families should be met, and that their care should encompass the physical, emotional, developmental and spiritual aspects of their lives.  hospicefoundation.ie/, T. 01 673188

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