LauraLynn Presents at 1st European Congress of Paediatric Palliative Care

29 Nov
2012

A huge honour that some of our clinical team (Phil, Claire, Shirley, Joanne & Niamh) are speaking & presenting at the 1st European Congress of Paediatric Palliative Care in Rome this week.

Reflections of the 1st year of life – LauraLynn House opens its doors as Ireland’s first children’s hospice

Authors: Dunne, Phil, CEO, LauraLynn Irelands Children’s Hospice, Dublin

Quinn, Claire Head of Education and Research, Laura Lynn Children’s Hospice /Lecturer, National University of Ireland, Galway

Contact details: pdunne@csh.ie / cquinn@csh.ie

Background and Objectives:

The publication of the Irish Palliative Care Needs Assessment for Children (2005) revealed home as the preferred place of care for the majority. Yet, current statistics indicate that many children still do not receive appropriate child centred community palliative care, specialised palliative respite care (DOHC 2010) or die in the home setting (DOHC/ IHF 2005). Recent national policy (2010) recommended the appointment of Ireland first Consultant in Children’s Palliative Care and the creation of eight national Outreach Nursing posts to support care in the community setting. However, the aspirations for a children’s hospice building was also seen publically as a priority.

Following an intensive fundraising effort, LauraLynn Ireland’s Children’s Hospice was formally opened in September 2011.

 

 

 

 

 

 

Aim and Objectives of the study:

Methodology:

This presentation will illuminate current care demands and increasing referrals to this new Hospice service. These figures along with the narratives of families will reflect the care needs of children and families from all over Ireland and demonstrate how LauraLynn can assist in the provision of national CPC and best respond to the wishes of the child and family.

Information regarding uptake of services during the first year of opening will also be presented and these figures will explain the dedicated response of the organisation to support children and families with varying LLI from a wide geographical area.

 

Results:

By sharing a ‘snap shot’ of the experiences of parents and children alongside the number of referrals during this first year, LauraLynn Hospice will validate it’s aspirations to collaborate and partner existing national service provision for Irish children’s palliative care.

 

Conclusion:

The philosophy of the organisation aspires to support existing stakeholders within Irish children’s palliative care, build on recent national initiatives, respond to family and child wishes and encourage the goodwill of existing agencies who pioneered and supported children’s palliative care including respite, symptom management and end of life care.

REFERENCES

Available on request.

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