All Ireland Institute of Hospice and Palliative Care (AIIHPC)

is an all island organisation, comprised of a consortium of eight health agencies and four universities, all working to improve the experience of supportive, palliative and end-of-life care on the island of Ireland.This is achieved by enhancing the capacity to develop knowledge, promote learning, influence policy and shape practice. The aim is to secure best care for those approaching end-of-life. Their work is focused on the following three areas: Education, Research, Policy and Practice.  aiihpc.org

 

BUMBLEance

Is a modern children’s ambulance service and is the world’s first interactive ambulance specifically designed for children with the capacity to operate the latest medical equipment and inter hospital communication systems.  It provides improved and professional medical transportation services for long-term sick and seriously disabled children who require professional ambulance transportation. They will transport children in a fun environment from the far reaches of Ireland, both urban and rural, to their treatment centres. This service is free. www.BUMBLEance.com  Tel. 083 0044 444

 

Central Remedial Clinic (CRC)

provides a range of specialised services for children and adults with physical disabilities. Its facilities and services are available to people from all over Ireland. They provide services such as: physiotherapy, occupational therapy, seating and mobility, gait analysis, speech and language therapy, nutrition and dietetics, nursing, educational technology, client technical services, social work, psychology and medical services. www.crc.ie

 

Enable Ireland

provides free services to children and adults with disabilities and their families from 40 locations in 14 counties. Covering childhood to adulthood their expert teams work with the individual and their family on a plan for each life stage. Their services for children and their families cover all aspects of a child’s physical, educational, and social development from early infancy through adolescence.  www.enableireland.ie

 

European Association for Palliative Care

is a non-governmental organisation (NGO) recognised by the Council of Europe, bringing together many voices to forge a vision of excellence in palliative care that meets the needs of patients  and their families. It develops and promotes palliative care in Europe through information, education and research using multi-professional collaboration, while engaging with stakeholders at all levels.  www.eapcnet.eu

 

Financial Wellbeing

are an organisaiton that specialise in setting up Special Needs Trust and guides parents on funding their child’s trust from entitlements, for the security of their future. Most parents are unaware of their full range of entitlements and the probability that their children’s quality of life can significantly reduce after their death. It can be prevented through Financial Well being Special Needs Trust Planning.  www.financialwellbeing.ie  T. 021 4823635

HSE

provides health and social services to everyone living in Ireland. Our services are delivered to young and old, in hospitals, health facilities and in communities across the country.  www.hse.ie

 

International Children’s Palliative Care Network (ICPCN)

is a worldwide network of individuals and agencies working with children and young people with life-limiting and life-threatening condition. The ICPCN shares a vision that the total needs of life-limited children and their families should be met, to encompass physical, emotional, social, spiritual and developmental aspects of care.  www.icpcn.org.uk

 

Irish Association for Palliative Care (IAPC)

is a multi-disciplinary membership organisation established in 1993 as an all island body with the purpose of promoting palliative care nationally and internationally. The children’s specialist interest group (SIG) was established as a working multidisciplinary group of the IAPC in November 2009 to be a learning network, a source of information and data and an expert advisory group to the IAPC Board. www.iapc.ie

 

Our Lady’s Children’s Hospital, Crumlin

is Ireland’s largest paediatric hospital. It provides evidence based quaternary, tertiary and secondary quality care to children and adolescents in a safe environment driven by knowledge through education & research.  www.olchc.ie

 

The Jack and Jill Children’s Foundation

provides direct funding to families of children with brain damage, who suffer severe intellectual and physical developmental delay, enabling them to purchase home respite care.  Additionally, they also provide palliative home nursing care for children age 0–4 years with neurological and non-oncology conditions.  www.jackandjill.ie

 

The Palliative Care for People with Learning Disabilities Network

is a voluntary organisation set up in 1998. The Network brings together service providers, people with a learning disability and carers working for the benefit of individuals with learning disabilities who have palliative care needs. www.pcpld.org

 

The Brothers of Charity Services

empower people with intellectual disability /autism to live the lives they choose.

Their focus going forward is to form a relationship/partnership with each individual and their family, enabling them to design their own service so that they can enjoy a real life in a real place with a healthy balance of supports. They wish to create opportunities for people with an intellectual disability.  www.brothersofcharity.ie

 

The Irish Hospice Foundation

was set up in 1986 to fund and help develop specific hospice services. The Irish Hospice Foundation shares an international vision that the needs of children with life limiting illnesses and their families should be met, and that their care should encompass the physical, emotional, developmental and spiritual aspects of their lives.  hospicefoundation.ie

 

Together for Short Lives

is the leading UK charity for all children with life-threatening and life-limiting conditions and all those who support, love and care for them. They support families, professionals and services, including children’s hospices. www.togetherforshortlives.org.uk

 

The Worldwide Palliative Care Alliance (WPCA)

is a global action network focusing exclusively on hospice and palliative care development worldwide. Their vision is a world with universal access to hospice and palliative care.www.thewpca.org

 

 

 

 

 

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